Mobile phone data and COVID-19: Missing an opportunity?

This paper describes how mobile phone data can guide government and public health authorities in determining the best course of action to control the COVID-19 pandemic and in assessing the effectiveness of control measures such as physical distancing. It identifies key gaps and reasons why this kind of data is only scarcely used, although their value in similar epidemics has proven in a number of use cases. It presents ways to overcome these gaps and key recommendations for urgent action, most notably the establishment of mixed expert groups on national and regional level, and the inclusion and support of governments and public authorities early on.

Data Protection Impact Assessments as rule of law governance mechanisms

Data Protection Impact Assessments (DPIAs) are a relatively new development in the governance of data processing. The recommendations in this article are a tool for policy-makers and civil servants developing data processing systems for government and undertaking DPIAs, to assist government to meet rule of law standards when implementing new data processing systems. The article also adds to analysis of the governance of data processing systems for all stakeholders, including civil society.

On the responsible use of digital data to tackle the COVID-19 pandemic

Large-scale collection of data could help curb the COVID-19 pandemic, but it should not neglect privacy and public trust. Best practices should be identified to maintain responsible data-collection and data-processing standards at a global scale.

Privacy of monitoring technology — Guidelines for introducing ambient and wearable monitoring technologies balancing privacy protection against the need for oversight and care

The purpose of this document is to offer a practical, structured guide to achieve such a balance between the respect for privacy and the obligation to provide timely care. The focus of the guide lies on frail or vulnerable citizens and it is intended to be primarily of use for care organizations. It also may have value for families, technology developers and providers as well as regulators and authorities. The guidelines describe a governance model and an adaptation of the informed consent process to accommodate the use of ambient and wearable monitoring technology in support of care decisions and treatment.

Measuring property registry in Brazil: A privacy by design econometric model

The Registering Property indicator of the Doing Business report is one of the 11 indicator sets published in order to evaluate business regulations in 190 countries. Tracking transactions at registry offices is key for evaluating this indicator. Currently, the availability of specific economic indicators for the Brazilian real estate sector is quite limited and heterogeneous, based on sparse and unrelated data sources. The digital development of the Brazilian property registry system, based on the Electronic Real Estate Registry System (SREI) model, requires the consolidation of statistical indicators on the operation of all registry offices in Brazil. SREI defines a distributed data architecture which promotes security and interoperability of registry data, offering a privacy by design approach for measuring property registry with the advent of the Brazilian General Data Protection Regulation (LGPD). This article presents an econometric model to evaluate property registry activity in Brazil in compliance with the data protection law.

A Survey of Blockchain-Based Strategies for Healthcare

This study aims to address research into the applications of the blockchain healthcare area. It sets out by discussing the management of medical information, as well as the sharing of medical records, image sharing, and log management. We also discuss papers that intersect with other areas, such as the Internet of Things, the management of information, tracking of drugs along their supply chain, and aspects of security and privacy. As we are aware that there are other surveys of blockchain in healthcare, we analyze and compare both the positive and negative aspects of their papers. Finally, we seek to examine the concepts of blockchain in the medical area, by assessing their benefits and drawbacks and thus giving guidance to other researchers in the area. Additionally, we summarize the methods used in healthcare per application area and show their pros and cons.

Digital Equity Through Data Sovereignty: a Vision for Sustaining Humanity

Many tens of billions of dollars are spent globally in dealing with the effects of
social alienation. Though difficult to quantify, this may be reduced through data sovereignty that returns dignity and self-determination to those facing vulnerability. Through research that informs innovative information frameworks and example implementations, we can move towards facilitating marginalised and displaced communities locally and internationally to meet their lifelong, rightsbased information, identity, memory, cultural heritage, evidence, and accountability needs. This, in turn can support initiatives to address historical and social justice, redress for human rights abuse, asylum, cultural safety, and security.

Pandemia y Derechos Humanos en las Américas

Resolução nº 01/2020 adotada pela Comissão Interamericana de Direitos Humanos destaca, entre outros temas, a importância da manutenção de proteção de dados e privacidade em meio à pandemia.

  12. Garantizar el consentimiento previo e informado de todas las personas en su tratamiento de salud en el contexto de las pandemias, así como la privacidad y protección de sus datos personales, asegurando un trato digno y humanizado a las personas portadoras o en tratamiento por COVID-19.  
  35. Proteger el derecho a la privacidad y los datos personales de la población, especialmente de la información personal sensible de los pacientes y personas sometidas a exámenes durante la pandemia. Los Estados, prestadores de salud, empresas y otros actores económicos involucrados en los esfuerzos de contención y tratamiento de la pandemia, deberán obtener el consentimiento al recabar y compartir datos sensibles de tales personas. Solo deben almacenar los datos personales recabados durante la emergencia con el fin limitado de combatir la pandemia, sin compartirlos con fines comerciales o de otra naturaleza. Las personas afectadas y pacientes conservarán el derecho a cancelación de sus datos sensibles.  

A report on personally identifiable sensor data from smartphone devices

In this paper, we seek to identify what types of sensor data can be collected on a
smartphone and which of those types can pose a threat to user privacy by looking into the hardware capabilities of modern smartphone devices and how smartphone data is used in the literature. We then summarize some implications that this information could have on the GDPR.

DOU traz regras do IBGE para operadoras de telefonia entregarem dados de clientes

O Instituto Brasileiro de Geografia e Estatística (IBGE) publicou no Diário Oficial da União (DOU) desta quarta-feira, 22, a instrução normativa que estabelece as regras para que as operadoras de telefonia enviem dados de clientes ao instituto. Com o texto, começa a contar o prazo de sete dias para que as empresas disponibilizem os dados para o IBGE.