To document global surveillance measures in response to the coronavirus pandemic, OneZero compiled press reports from more than 25 countries where potential privacy issues are occurring. The most common form of surveillance implemented to battle the pandemic is the use of smartphone location data, which can track population-level movement down to enforcing individual quarantines. Some governments are making apps that offer coronavirus health information, while also sharing location information with authorities for a period of time.
Nowadays, researchers hunt for the right vaccine for protection against the virus and/or and medication for the effective treatment of coronavirus patients. That means a lot of scientific research. And that often leads to questions about the protection of personal data. To what extent can health data be used for these purposes and how does one ensure that – even in times of crisis – the requirements of the General Data Protection Regulation (“GDPR”) are met?
To foster responsible data sharing in health research, ethical governance complementary to the EU General Data Protection Regulation is necessary. A governance framework for Big Data-driven research platforms will at least need to consider the conditions as specified a priori for individual datasets. We aim to identify and analyze these conditions for the Innovative Medicines Initiative’s (IMI) BigData@Heart platform. |
We performed a unique descriptive case study into the conditions for data sharing as specified for datasets participating in BigData@Heart. Principle investigators of 56 participating databases were contacted via e-mail with the request to send any kind of documentation that possibly specified the conditions for data sharing. Documents were qualitatively reviewed for conditions pertaining to data sharing and data access.
Analysing personal data is a privilege requiring researchers to safeguard data and to use data wisely. Safeguarding data means protecting the identity of individuals. Using data wisely means using, reusing, and sharing data to their maximum potential. More researchers should be given safe access to previously collected data from expensive clinical trials and laboratory or epidemiological studies. Journal editors therefore increasingly require a data sharing statement in published articles.
Relatório de resultados do projeto Data, Privacy and the Individual do Center for the Governance of Change, IE University. O relatório contém um resumo de sete artigos e um questionário, resultados do projeto. Os temas vão da ética do tratamento de dados pessoais aos meios técnicos e tecnológicos de garantia da privacidade. A seguir um breve resumo em tópicos dos principais pontos levantados, e o link para download do documento ao final.Continuar a ler “[relatório] Data, privacy and the individual”
Common prices criminals pay one another for products and services that fuel the cybercriminal ecosystem.
Researchers with Armor’s Threat Resistance Unit (TRU) research team recently released a report with detailed analysis on just exactly what those prices look like for many common black market products. Those findings, along with data from recent reports released by researchers at Deloitte and ESET within the last year, were compiled for this guide on just what crooks invest to fuel their online criminal enterprises.